Pediatric Chronic Illness Conditions and Diseases

Pediatric

Sites on chronic illness in children. In a nutshell, it's a problem or condition that may limit what a person can do, that doesn't always go away [kids definition].

• Top/Health/Child Health/Conditions and Diseases
• Top/Health/Mental Health/Grief, Loss and Bereavement/Children's Grief

• - Explains to children what their ill friend or relative experiences and what they can do themselves.
  
• - Short paper on the importance of pain management.
  
• - Florida Department of Health Children’s Medical Services Network describes family centered care, integration of care coordination. Includes assessment steps, tips and ideas and forms.
  
• - Tips and strategies for parents with newly diagnosed teenagers.
  
• - Complete article (also as PDF) on longterm needs, financial and medical planning.
  
• - Information from The Child Health Library of Children's Hospital of Pittsburgh.
  
• - Slide show by National Center of Medical Home Initiatives for Children with Special Needs explains two new options: Chronic Care Model and Medical Home Project.
  
• - Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
  
• - AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
  
• - Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
  
• - Empowerment Programs and chatrooms, videos, comic books and cd-roms. Topics: school re-entry, coping with hospital life, radiation therapy; reintegration after burn injury.
  
• - Explains teenagers how to cope, to take control, deal with others.
  
• - Assessment and Intervention Strategies article in Pediatric Nursing describes parent stressors, coping assessment tools, nursing assessment tools and a framework for intervention.
  
• - Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
  
  

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