Cystic Fibrosis Genetic Disorders Conditions and Diseases
Cystic Fibrosis Genetic Disorders Conditions and Diseases
Cystic Fibrosis is an inherited disease of the exocrine glands, affecting the pancreas, respiratory system, and sweat glands. Usually beginning in infancy, it is characterized by chronic respiratory infections, pancreatic insufficiency, and susceptibility to heat prostration. Information found here includes research and testing; organizations involved in support, information or research; support groups; fundraising foundations and events; conferences, camps, and centers.
Top: Health: Conditions and Diseases: Genetic Disorders: Cystic Fibrosis
See Also:
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Cystic Fibrosis Western Australia - Includes a calendar of events, information for people with CF who travel to Australia from other countries (what their healthcare entitlements are), pointers for teachers of children with CF, and a list of services and support.
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Cystic Fibrosis Health FactSheet - Concise factsheet on causes, symptoms and treatment of cystic fibrosis, this factsheet can also be downloaded in Acrobat format
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A-Z Directory of Cystic Fibrosis Resources - Biomedical directory with listings of hospitals, charities, research, and information by topic and location.
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MyCysticFibrosis.com - Personal management tools to help track important health measures, together with in-depth articles and personal support from site specialists. Members can share data with caregivers and their healthcare team.
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Cystic Fibrosis: Therapeutic Options for Co-management - Illustrated article details causes, symptoms, treatment, prognosis, and other effected systems.
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MedlinePlus: Cystic Fibrosis - A source of links which provide news, overviews, diagnosing, symptoms, treatments, clinical trials, and related issues pertaining to CF.
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The Spirit of Lo - Inspirational Book - Book about Cystic Fibrosis and the effects on the family. Tells the story of an ordinary family and their struggle with having a chronically ill child.
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CysticFibrosis.com - Internet community for cystic fibrosis patients, families and loved ones. Information on clinical trials, gene therapy, testing, associations, research and events.
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Cystic Fibrosis Medicine - Provides free information to professionals involved with the treatment of cystic fibrosis. An open access section is also available to both patients and family
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Pulmozyme.com - Cystic fibrosis information, symptoms, and treatments. Pulmozyme (dornase alfa) inhalation solution, from Genentech, Inc.
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Home Page-Harminder - Details from an article "CFTR as a cAMP-Dependent Regulator of Sodium Channels". Also, what new treatments might develop if the theory behind this article prove true.
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Jewish Genetic Diseases - Cystic Fibrosis - Page with basic information on Cystic Fibrosis: symptoms, incidence in people of Jewish descent (Ashkenazi Jews), diagnosis, treatment, and screening.
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The Breathing Room - Guidance about the art of living with cystic fibrosis.
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Cystic Fibrosis Resource Center - Directory about Cystic Fibrosis, including books, medical news, articles and information, links, message boards.
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Clayton Bates Cystic Fibrosis Support Site - For family, friends, and other supporters to find out about the disease and offer support for Clayton.
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Cystic Fibrosis Resource Centre - A source of information for cystic fibrosis patients, parents, doctors and other carers.
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Cystic Fibrosis Links - Cystic Fibrosis Links and Information
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YourLungHealth.org : Cystic Fibrosis - Explains this complex disease, including symptoms, causes, diagnosis, current treatments, prevention, and links to additional information.
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CF Prescriber - Provides a place to search various databases for Cystic Fibrosis articles, links to other CF sites, a message forum and a wide variety of information on management of the disease.
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