Willi Syndrome Prader Genetic Disorders
Willi Syndrome Prader Genetic Disorders
Willi Syndrome
Top: Health: Conditions and Diseases: Genetic Disorders: Prader-Willi Syndrome
See Also:
- Information and resources about this chromosomal disorder.
- Characteristics include hypotonia, insatiable appetite, obesity if food intake is uncontrolled, hypogonadism and incomplete sexual development, developmental delays, variable degrees of mental retardation or functional retardation, short stature (adult)
- Information about the organization that offers residential care for people with Prader-Willi Syndrome.
- Includes news, important dates, fund raising, maps and links.
- A forum to provide a support base for PWS without having to join one of the national or international associations, and to make people more aware of PWS.
- Informative regarding PWS, its symptoms, causes, prevention and treatment.
- OPWSA provides support and information to all those interested in finding out about this syndrome. A special emphasis on Canadian content.
- Includes details about the organization, a diagnosis/infant guide, a general guide, members stories and links.
- Represents the interests of individuals in New York State with Prader-Willi syndrome, their families, and the professionals who provide services to the Prader-Willi population.
- A non-profit group of volunteer families, friends and researchers aiming to raise funds for research into finding treatments.
- Diagnostic assessment, selected treatment services and opportunities to participate in research from the Yale University Child Study Center.
- Designed to provide useful background on Prader-Willi Syndrome (PWS) for parents and to organize medical information that may be helpful for future research directions.
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