Danlos Syndrome Ehlers Connective Tissue Musculoskeletal Disorders

Danlos Syndrome Ehlers Connective Tissue Musculoskeletal Disorders

Ehlers-Danlos Syndrome is a connective tissue disease, affecting collagen. Joints are very flexible and skin is loose and fragile.

Top: Health: Conditions and Diseases: Musculoskeletal Disorders: Connective Tissue: Ehlers-Danlos Syndrome

Editor's Picks:

Ehlers-Danlos National Foundation

- American nation-wide support and information to those affected by EDS. Includes many articles, message boards, chat room, information for medical professionals, and regional support groups.

Ehlers Danlos Foundation of New Zealand - Support for sufferers of the Ehlers-Danlos Syndrome and related Hypermobility Syndrome and provides some information for the medical profession and general public.
EDS Today - The newsletter for, by, and about people with the condition. Includes featured articles, columns, and contact information for support groups worldwide.
Coalition for Heritable Disorders of Connective Tissue - Research organization for genetic connective tissue disorders.
Ehlers-Danlos Syndrome Support Group - This site offers information for patients and doctors, plus links.
Diagnose-Me: Treatments: Prolotherapy - Some EDS patients have obtained excellent results with prolotherapy treatments.
Electronic Textbook of Hand Surgery - Eaton Hand provides a glimpse inside the hand, wrist, and elbow. Discover how your joints are supposed to work, what goes wrong in dislocations, and how injuries and ailments are treated.
EDS Living - a Journal - Learn what it's like to live with EDS for this woman and her children by following her online journal.
The Canadian Ehlers-Danlos Association - Working together to provide assistance, support and resources for people living with this rare genetic disorder.
Ehlers-Danlos Syndrome Medical Information - Doctor-produced information on the different types of EDS, including Tenascin-X Deficiency; treatments, and pregnancy considerations.
NORD: Ehlers-Danlos Syndrome - Information about EDS from the National Organization for Rare Disorders.
Hypermobility & Fibromyalgia Support Site - Offers information and support for ehlers-danlos syndrome, joint hypermobility, fibromyalgia, and several other related disorders.
Sandy Simmons' Connective Tissue Disorder Site - Explores environmental and nutritional links in healing connective tissue disorders (Ehlers-Danlos, HMS, Marfans, and others)
Arthritis Foundation Disease Center: Ehlers-Danlos Syndrome - Symptoms, diagnosis and treatment of the condition.
The Swedish Ehlers-Danlos Syndrome National Association - The purpose of the association is to support members, to inform them and their families, physicians, dentists, other nursing staff and the general public about EDS concerning symptoms and consequences. Find contact details and links.
American Massage Therapy Association - The Hypermobile Client/Therapist - Hypermobility can be a problem for both massage therapists and clients, AMTA discusses solutions therapists can readily employ.
"China Doll" Syndrome - Personal site of a patient with vascular type EDS. Moon relates how she was diagnosed after one hospital missed a double aneurism - fortunately a second hospital discerned the problem before it was too late! Pictures included.
Oral Manifestations of Ehlers-Danlos Syndrome - EDS causes many dental concerns that you, your dentist, and your medical team must be aware of. This excellent article covers the problems and solutions in detail.
Ehlers-Danlos National Foundation - Michiana Branch - Support group for individuals and families from Michigan and Indiana who have the condition. Meetings are held in South Bend, Indiana. Includes schedule and maps.
Ehlers-Danlos Hope - A Syrian patient gives a personal plea for better medical support and research.
Hypermobility Portal - Serves as a window to message boards, medical articles, support groups, and other resources for people with hypermobility disorders.
Arthritis Insight-EDS Tips for Surgery - If you or a family member with EDS needs surgery, read this and share it with your doctor.
eMedicine - Ehlers-Danlos Syndrome - Article by two dermatologists covers many patient concerns regarding skin, joints, blood vessels. Includes potential treatments.
Department of Pathology - Information regarding laboratory testing for different EDS types. Also includes limited information on Tenascin-X Deficiency Syndrome, a recently discovered disorder that shares symptoms with EDS.
HealthWise: Ehlers Danlos Syndrome - Expands on NORD's information about EDS, includes great detail on symptoms and cross-over of types.
Ehlers-Danlos Syndrome Information - A series of short articles regarding genetics, diagnosis, treatment, and coping for people with EDS from the University of Washington's Orthopedics and Sports Medicine Department.
The Hypermobility Syndrome Association - HMSA serves people with Hypermobility Syndrome, Ehlers-Danlos, and related joint disorders with information, referrals, and message boards.

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