Organizations Muscular Dystrophies Muscle Diseases Neurological Disorders

Organizations

• - Not-for-profit medical research foundation working to find a treatment for muscular dystrophy and other genetic diseases through cell/gene therapy. Site describes treatments and clinical trials.
  
• - Dedicated to educating potential parents about Myotonic Dystrophy and genetic testing. Information about fundraising, both for research and to assist people who cannot afford testing, news, stories, and about Logan Paige.
  
• - Voluntary organization in Ireland which provides support for people with muscular dystrophy and their families.
  
• - Organization dedicated to serving people with muscular dystrophy and other neuromuscular diseases who live in New Zealand.
  
• - Focus On the Cure Foundation raises funds that go directly toward supporting research for a cure of Duchenne Muscular Dystrophy.
  
• - The Muscular Dystrophy Association of South Australia provides a range of individually designed support services for all persons with muscular dystrophy and neuromuscular disorders, their families and their carer/support provider, including therapy, infor
  
• - Extensive information on the range of disorders, research information and many links to onsite publications. Also provides an international support network with a chat service dedicated for use by the worldwide Muscular Dystrophy community.
  
• - Parent Project Muscular Dystrophy in Nepal focuses on Duchenne and Becker Muscular Dystrophy, by providing practical, medical and emotional support to the people and families affected by the condition.
  
• - Northern Ireland branch of Muscular Dystrophy Campaign includes news, events, staff profiles, information about the Regional Muscle Clinic and a web directory.
  
• - FED is a non-profit organization established to find a cure for Duchenne Muscular Dystrophy, the leading lethal childhood genetic disease.
  
• - National voluntary agency committed to eliminating neuromuscular disorders.
  
• - Nonprofit foundation that provides adaptive equipment and emotional support to individuals and families affected by any one of 40 neuromuscular diseases.
  
• - European fund raising foundation for Muscular Dystrophy in relation with Harley-Davidson events, H.O.G. Chapter events and Harley-Davidson dealers within the European community.
  
• - Parent Project Muscular Dystrophy is a not-for-profit organization founded in 1994 by parents of children with Duchenne and Becker Muscular Dystrophy.
  
• - Muscular Dystrophy Association of Slovenia
  
• - The FSH Society address issues and needs related to FacioScapuloHumeral Muscular Dystrophy (FSHD).
  
• - Voluntary health agency providing information and supporting research into neuromuscular diseases, including Muscular Dystrophy. The MDA site contains information about many forms of muscular dystrophy, including lists of ongoing clinical trials, an &quo
  
• - Muscular Dystrophy Association Singapore (MDAS) is a self-help organization committed to uplift the lives of people with Muscular Dystrophy.
  
• - Features organization background, disease information, newsletters, membership information, resources, and contact details.
  
  

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