Chats and Forums Support Groups Muscular Dystrophies Muscle Diseases Neurological Disorders

Chats and Forums

These are online communities or meeting places which provide information and support to members sharing a common experience such as a condition or disease, or a care-giving role. Message boards, mailing lists, chat rooms and moderated forums may be found here.

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• - Mailing list for Christians who have Duchenne Muscular Dystrophy.
  
• - Discussion group for single mothers whose children have Muscular Dystrophy.
  
• - Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
  
• - Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
  
• - Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
  
• - Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
  
• - Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
  
• - Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
  
• - Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
  
• - A mailing list/support group for people living with Duchenne Muscular Dystrophy. Family, caregivers and friends of those affected by DMD may also participate.
  
• - Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
  
• - Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
  
• - International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
  
• - An online support group for people affected by any neuromuscular condition.
  
  

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