Tuberous Sclerosis Neurodegenerative Diseases Neurological Disorders

Tuberous Sclerosis Neurodegenerative Diseases Neurological Disorders

Tuberous Sclerosis

Top: Health: Conditions and Diseases: Neurological Disorders: Neurodegenerative Diseases: Tuberous Sclerosis

See Also:

- Offers commonly asked questions about this disease.
- US advocacy and support organization provides information about tuberous sclerosis complex, research on its genetics and treatment, and support for patients and their families.
- Marian's story. Information about the disease, pictures, contacts, medicine, links.
- Developed by the National Institute of Neurological Disorders and Stroke (NINDS).
- Offers alternative names, a general discussion and further resources.
- A short information sheet on this disease compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
- Site includes contact e-mail sites for board members across Canada, fact sheets about TSC, a forum for sharing information, and portions of the TSCST newsletter, Connections.
- A brief definition of, followed by links to overviews, research articles, case reports and images.
- A list of synonyms, a summary and major features of tuberous sclerosis.
- UK charity supporting sufferers, promoting awareness, and seeking the causes and best possible management of this genetic disease. Resources for patient families and information on this condition.
- Kolten's story about living with this disease. The daily seizures that took over his life and the amazing surgery that gave it back to him.
- Nonprofit dedicated to raising awreness about Tuberous Sclerosis Complex; raising fund for The Children's Hospital of Phila., The Epilepsy Foundation, The Tuberous Sclerosis Alliance. Includes info links and Tamara's health updates.
- Personal journal of a mother focused on her son's rare genetic disorder, which causes tumors in multiple parts of the body and causes neurological symptoms. Includes patient stories.
- Organized in 1993 to assist in the medical care of children and adults with tuberous sclerosis.
- An incurable genetic condition that causes tumors to grow in various places in the body.

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