Pierre Robin Syndrome Rare Disorders Conditions and Diseases

Pierre Robin Syndrome Rare Disorders Conditions and Diseases

Characterized by a combination of three features, possibly due to the underdevelopment of the lower jaw. The lower jaw is abnormally small (micrognathia), the tongue is displaced downwards (glossoptosis), and there is an abnormal opening in the roof of the mouth (cleft soft palate).

Top: Health: Conditions and Diseases: Rare Disorders: Pierre Robin Syndrome

See Also:

Top/Health/Conditions and Diseases/Musculoskeletal Disorders

Pierre Robin Network - Provides general information about the condition, including genetics, issues and a glossary. Also offers an email group, message board, and personal accounts.
Chase's Story - Personal account of one child's experience of this condition. Includes photographs.
Contact a Family: Pierre Robin Syndrome - Main features of the condition and possible causes.
NORD - Pierre Robin Syndrome - Sample report, plus links to organisations. [Fee required for full report]

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