Hurler Syndrome Mucopolysaccharidoses Inherited Nutrition and Metabolism Disorders
The story of Jenna Marie who was born with MPS in 1997. Features updates on her condition and highlights of her life.
Top: Health: Conditions and Diseases: Nutrition and Metabolism Disorders: Inherited: Mucopolysaccharidoses: Hurler Syndrome
- MedlinePlus Medical Encyclopedia: Hurler syndrome - Information about Mucopolysaccharidosis type I (MPS I), also known as hurler syndrome Alpha-L-iduronate deficiency. Outlines the basic facts such as symptoms, hurler syndrome treatments, and prognosis.
- Jenna Marie's Page - The story of Jenna Marie who was born with MPS in 1997. Features updates on her condition and highlights of her life.
- Obviously Grace - A mother writes about her experience as a mucopolysaccharidoses mother of mucopolysaccharidoses a child who had a form mucopolysaccharidoses of MPS and died mucopolysaccharidoses at age eight.
- It's me, Micol - An imaginative personal account written by a parent telling the mucopolysaccharidoses story of a child\\'s experiences growing up with MPS. Originally mucopolysaccharidoses written in Italian, it has an English equivalent.
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