Phenylketonuria Rare Disorders Conditions and Diseases

Organisation providing information and news to families and professionals. Includes general information about the condition, dietary advice, research, personal stories and support.

• Top/Health/Conditions and Diseases/Nutrition and Metabolism Disorders
• Top/Health/Conditions and Diseases/Neurological Disorders/Brain Diseases
• Top/Health/Conditions and Diseases/Genetic Disorders

• Pediatric Oncall - In-depth look at Phenylketonuria (PKU). Includes symptoms, diagnosing, rare disorders newborn phenylketonuria screening, treatment and follow up.
• Genes and Diseases: Phenylketonuria - Brief genetic information.
• Phenylketonuria - Definition, causes, symptoms and treatments.
• MedlinePlus: Phenylketonuria - Definition, causes, symptoms and treatment.
• National PKU News - Organisation providing information and news to families and professionals. Includes conditions and diseases general information about the condition, dietary advice, research, personal stories conditions and diseases and support.
• PKU Exchange - Offering a UK food database, exchange calculator, recipes, phenylketonuria and articles. Includes a message board.
• PKU-Info.org - Provides general information, plus links to organisations, suppliers rare disorders and rare disorders mailing lists. Also includes a forum. [English rare disorders and German]
• Children's PKU Network - Organisation offering education and direct assistance. Includes details of projects, phenylketonuria plus links to food suppliers.

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