Personal Pages Lupus Connective Tissue Musculoskeletal Disorders

Personal Pages

Lupus:Personal Pages consolidates and shares lupus patients personal websites. Many patients offer peeks in their journals, share their progression and treatments, discuss coping strategies and their experiences while battling lupus.

• Top/Society/Disabled/Personal Pages

• - Learn about Terri's struggle, about her disease, and her life through an online journal. Chats and message boards for fellow sufferers including lupus, COPD, and congestive heart failure.
  
• - Outlines different types of the disease, directory of support and informational sites, and share a personal experience.
  
• - Health through knowledge and power: information, statistics, little known facts, common misconceptions, and more than 60 personal stories.
  
• - Follow Brett Borowski from initial diagnosis in 1994 to the present, including treatment with Cytoxan. It includes a narrative account, lab results, medications, and other resources.
  
• - Lupus information, support, stories and FAQs. Questions from fellow lupies and their friends and family are welcome.
  
• - Maintained by consultant rheumatologist and featuring information and support for patients and those with variant and other autoimmune connective tissues diseases, such as Hughes syndrome.
  
• - Information about Lupus, news updates, forums for sharing personal experiences, a support group and resource links.
  
• - Frequently asked questions and answers addressing symptoms, treatments, common diagnostic tests and procedures, and filing for disability in the US and UK. Also includes information on the usernet alt.support.lupus.
  
• - Directory of pamphlets, articles, and personal stories to learn more about the disease, coping mechanisms, and support.
  
• - The author tells about her life with this disease. Find support, links, chat and prayer.
  
• - A collection of articles, stories, book and product reviews, with health resources and a message board.
  
• - Includes photo of discoid rash, causes, and treatment courses.
  
• - General information, personal experiences, a 30 year Lupus patient, with extensive links.
  
• - Diagnostic information, tests, medications, advice, support, forum, and survey with over 150 pages of information.
  
• - The effect of lupus on my life, information about lupus and support in the UK like benefits, care, wheelchairs, links to support groups and facts, a chat room.
  
• - Jaynee Levy-Polis shares her personal experience with mild Central Nervous System disease as well as information about symptoms, treatments, and coping.
  
• - Both general and personal disease information, and how to get free medications.
  
• - After 16 years with SLE she needs a transplant.
  
• - A Story of a systemic disease sufferer in the UK, with additional informational directory.
  
• - A personal story about life with lupus.
  
  

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