Chronic Illness Conditions and Diseases

Dealing and coping with Chronic Illness in general, advise to patients, relatives, caretakers, health workers. Only lists information not linked to a specific disease. Chronic illness means lifelong in duration, treatable but rarely cured completely, and typically requires persistent self-management behaviors. Synonyms to chronic illness: long-term disease, chronic condition.

• Chronic Disease Prevention - Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
  
• Learning to Live with a Chronic Condition - Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
  
• Living with Chronic Illness and Pain - Explains how lifestyle changes can be effective in self-managing a condition. From Men's Health Peer Education.
  
• Coping with a Chronic Illness in your Family - Advice to family members, including communication, financial matters, independence and taking charge.
  
• Household Management Questions for Others with Chronic Illness - Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker.
  
• Yoga For Chronic Illness - Article explains how yoga helps to maintain and restore health by stretching and breathing.
  
• Living with Long Term Illness - Tips and ideas on dealing with a chronic condition in daily life. Personal site.
  
• Chronic Conditions - Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
  
• Biotoxin Illness - Ritchie Shoemaker, MD and his research team share new peer-reviewed medical research and clinical treatment protocols along with an online screening test for biotoxin illnesses such as CFIDS, Fibro and Lyme.
  
• Next steps after your diagnosis: finding information and support - Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA).
  
• It's Your Life - E-book on chronic disease management available for free online reading or download.
  
• Chronic Illness Tips - A personal account of strategies for daily living.
  
• Chronic Illness Alliance Inc. - A representative body for Australian organizations. Promotes details of campaigns and activities, and offers news, articles and information.
  
• Chronic Disease: Forming Healthy Relationships - Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF]
  
• Improving Chronic Illness Care - Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
  
• Managing your Chronic Illness - British Columbia's patient information with links to programs.
  
• Living with Chronic Illness - Personal advice on making adjustments and maintaining hope.
  
• Coping with Chronic Illness - Offers links to patient information and publications by the National Institutes of Health.
  
• Diet, Nutrition and the Prevention of Chronic Diseases - Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis. [PDF]
  
• Managing Long Term Conditions (Chronic Disease Management) - A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals.
  
• Ten Steps for Coping with a Chronic Condition - Harvard Health Publication Letter. Patient oriented advice.
  
• Palliative Care Council of South Australia - Resources to comfort, relieve pain and distress for people who are dying, and to support parents, families and friends in approaching death and healing grief.
  
• Learning to Cope with Chronic Illness - Practical advice to patients and significant others.
  
• A Day in a Life with Chronic Illness - A personal account of daily events aims to promote better understanding.
  
• Preventing Chronic Disease: Public Health Research, Practice and Policy - A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
  
• Guidance for People Facing Serious Illness - Handbook gives short, practical advice how to handle serious illness and dying.
  
• Patient Self-Management - Chronic Disease Care - Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundati
  
• Chronic Illness - Journal providing a forum in which researchers from a wide range of disciplines, clinicians, policy makers, and people living with chronic illness come together to clarify the common principles underlying the experience and management of chronic illness.
  
• Center for Research on Chronic Illness - Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
  
• Chronic Illness: Acceptance Is the First Step Toward Healing - Short description of the day to day acceptance process.
  
• Living with Chronic Illness and Disease - Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
  
• Chronic Illness Coping - Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
  
• Chronic Health Conditions not a Barrier to Successful Aging - Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin.
  
• Report of the Working Group on Long-Term Care - US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings.
  
• Chronic Disease Management - British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model.
  
• Preventing Disability in the Elderly With Chronic Disease - Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
  
• Health Issues Unmasked - A weblog dedicated to exploring the issues behind the diagnoses, the statistics, and behind the headlines on chronic illness, health policy, and complementary and alternative medicine. By a journalist, Jacqueline L. Jones.
  
• Health Action Network - A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources.
  
• Expert Patients Programme for Long-term Patients - Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
  
• Chronic Disease: Prevention and Management - Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006.
  
• Stanford Self-Management Programs - Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
  
• Illness, Disability and Social Inclusion - Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
  
• Poem, Pain Management, Chronic Illness - Poem about coping with pain using relaxation and imagery.
  
  

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