Chronic Illness Conditions and Diseases

Chronic Illness

Dealing and coping with Chronic Illness in general, advise to patients, relatives, caretakers, health workers. Only lists information not linked to a specific disease. Chronic illness means lifelong in duration, treatable but rarely cured completely, and typically requires persistent self-management behaviors. Synonyms to chronic illness: long-term disease, chronic condition.

• - The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.
  
• - Short explanation to counselors on defense mechanisms and coping styles of patients.
  
• - British Columbia resources for physicians, patients and researchers. Includes success stories, reports, research and Chronic Care Model.
  
• - Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.
  
• - Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.
  
• - Questions, concerns and links provided by Australian Palliative Care Council.
  
• - Dealing with the child's resentment and embarrassment. The importance of key events and acknowledging the child's own health complaints.
  
• - A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.
  
• - Advice for doctors and health workers on treatment and support of chronic ill patients. [PDF]
  
• - Personal advice on making adjustments and maintaining hope.
  
• - Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.
  
• - Handbook gives short, practical advice how to handle serious illness and dying.
  
• - How to recognize depression and when to consult the doctor.
  
• - Describes adjusting to illness in the family, with several personal articles.
  
• - A personal account of strategies for daily living.
  
• - Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.
  
• - Article explains how yoga helps to maintain and restore health by stretching and breathing.
  
• - Patients, doctors and researchers discuss diseases: Gulf War Syndrome, Chronic Fatigue Syndrome, AIDS, biological and chemical weapons. Many articles.
  
• - Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions. [PDF]
  
• - National Center on Caregiving offers fact sheets, advice, research reports, public policy briefs, and newsletters.
  
• - British Columbia's patient information with links to programs.
  
• - Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.
  
• - Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.
  
• - Paper discusses core skills, use in educational programs, effects on health status, key ingredients for more efficacy.
  
• - Background paper also proposes multi-partnered data base renewal (2003).
  
• - Harvard Health Publication Letter. Patient oriented advice.
  
• - Poem about coping with pain using relaxation and imagery.
  
• - Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.
  
• - Personal articles concern this condition and others.
  
• - Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).
  
• - Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.
  
• - Explains how lifestyle changes can be effective in self-managing a condition.
  
• - Practical advice to patients and significant others.
  
• - Seminar from The Pituitary Foundation's Third National Conference.
  
• - A personal account of daily events aims to promote better understanding.
  
• - The London Borough of Hackney offers support through council, community, and government agencies in the fields of jobs, leisure, transport and allowances.
  
• - Advice to family members, including communication, financial matters, independence and taking charge.
  
• - Short description of the day to day acceptance process.
  
• - Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.
  
  

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